it is 12:37 a.m. i am sitting on the floor next to the baby swing in the nursery. the light is off, but the door is open, letting in the light from the living room. arianna is slowly being lulled to sleep with the motions from the swing and cheap quality sounding lullabyes playing (the swing comes with different sounds, waves, rain, stream and lullabyes). it has been a rough night for her. not as bad as some of the past few nights, but still, upsetting for her. you see, my sweet beautiful little girl suffers from intense gas pains. and when she farts, she stops crying. but that might take an hour to work it out. so until then, she refuses to eat, even though she's hungry and past her feeding time, and she cannot be calmed. each time, it ends up being a random thing that will calm her. tonight, it is the swing. as soon as i put her in (screaming, mind you) and started the swing, i hear it. the gas that's been cramping her up. and it's a long one. man, i think, she must've been hurting from that one! sometimes, just putting her on her changing table is enough to quiet her. for some strange reason, she likes being on her changing table. i have NO clue why, but i don't need to know. it works. sometimes she likes going outside. hearing the birds and feeling the wind and the sun is enough stimulation to distract her. let's see...what else? oh yes, the washer and dryer. classic. put her in her baby carrier and do a few loads of laundry. or have dave carry her in the baby bjorn. each time it's a different thing. i just have to always figure it out. on a different note, today we had a dr.'s appt. in danville with the endocrinologist. everything so far is good that way. she was low in calcium when she left the hospital and they still don't know why. they think it could have been from the blood transfusion she had. we had to go to the lab and get some blood taken to test that. she didn't like being pricked. today she has an appt. up here with the cardiologist. we will find out how her heart's doing and if she can be weaned off of some of her medicines. in case anyone's curious, and to give me something else to write about, here's all the medicine she's been on:
- .3 ml 2 times/day of digoxin (this keeps her heart rate low)
- .4 ml 1 time/day of lasix (a diuretic to keep fluid from building around her heart. it makes her pee a TON)
- 2 ml every 3 hrs. when awake of calcium gluconate (b/c she is low in calcium)
- 1 ml 2 times/day zantac (for her acid reflux)
- 1 ml 1 time/day mulitvitamin w/ iron (b/c it's good for her)
i have to mix it with formula and give it to her that way. they're all liquids. sometimes i wonder if all these medicines could have side effects that i have no way of knowing. maybe she's in more pain than i know about and maybe it's creating an environment in her body that's more prone to getting gas. who knows. anyway, she's asleep now. so i am going to try to slowly move her to her crib. i'm sorry i don't have any pictures, we returned our digital camera (defective battery and all around annoying setup) and hope to buy another one soon. i can't wait to start putting more pictures up! good night!


7 comments:
What Laura failed to say is that she does this every night. I have to go to bed so I can get up early and go to work, but she is an amazing mother staying up with Arianna into the wee hours of the morning by herself. She finaly shuffles to bed when I am somewhere between REM sleep and being chased by an African Elephant. I don't know what Arianna and I would do without such a wonderful woman. Love you babe.
-David
Gas is just as bad as menstrual cramps... poor Ari, she's got a lot to look forward to! Good thing Mommy is around to soothe her. Good job, Laura!!! You're awesome at this, I can tell!
Hi Laura,
I thought I'd mention that sometimes when little ones have surgery and anesthesia, their little bowels don't seem to "wake up" very quickly. Things move sluggishly for awhile.
My little man, Isaac, regularly takes Milk of Magnesia -about 2 mls twice a day) for constipation. However he had surgery in December (to replace his shunt (ventriculo-peritoneal shunt) for his hydrocephalus). After the surgery we had to up his MOM to 7 mls twice a day just to get him to have a movement. But just within the last 2 weeks, we've been able to decrease it to 5 mls - suddenly things are moving now!
Anyway, it may just take some time for Arianna's little bowels to being to move things along at a normal pace. My little man has reflux, as well. He takes Prevacid for that.
It's not easy caring for a sick little one. (Isaac doesn't sleep well, either.) All the love in the world sometimes isn't enough when SLEEP is what your body needs. Be sure to sleep ANYtime Arianna does. Don't feel guilty about that. Your body needs it too.
I know, this subject (bowel movements) is so uplifting isn't it? My goodness, what bloggers won't talk about ! (tee hee hee)
May God continue to pour out onto you and your hubby the wisdom, strength and grace that you need for this special little girl of yours.
Alesha
www.xanga.com/akconklin
la--you're amazing.
but you know what? for everything that little baby's been through it's pretty amazing she's even around to keep you up all night. what a blessing. i just think about where she's come from and am hopeful for what's ahead!! God must have some amazing things planned for her little life.
i miss you. it's been a long time since we talked and i think it's just that we're on such difference schedules. i think about you every day and pray for you and arianna. i love you, la. :*( and miss you.
Hey there Laura, Had a couple smiles because of this article. rought back some memories over the years of her fathers flatulance problems. Guess she gets that more from her fathers side, ey? Hope they don't ever decide to gang up on you. That would be unbearable! Still praying for you guys. You are doing a wonderful job with our beautiful granddaughter. God is so good, and His grace is always sufficient!
We love you,
Grandpa and Grandma Siegrist
Hi Laura
Gas is horrible for babies! Mylicon drops were my best friend in the beginning months for my son. He has a very sensitive stomach and had to quit nursing and try multiple formulas until we FINALLY got the right one, when he was going on 2 months old. How tough that was! So if the Dr's see no problems with gas drops, they work wonders! The no name brand are just as great as the VERY expensive mylicon ones. It breaks the gas up so she can get it out easier and quickly. But look out, it can be like a machine gun! But makes for a much happier baby! Just a little something that worked great for me, and thought I would pass on. It can be given up to 12 times a day, so basically every feeding. I'm not for giving unneeded meds to my little guy, but I couldn't live without them!
Arianna is beautiful and I love her name! God bless!
Erica Brokopp
www.brokoppbits.blogspot.com
You gotta post pics of your darling girl!!! I keep checking your site but I don't see any yet :)
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